Comments on: Cortico-Basal Ganglion Degeneration, Mom and Me http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/ ...the fossil record speaks! Mon, 05 Jul 2010 01:42:38 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Anne http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-82 Anne Mon, 05 Jul 2010 01:42:38 +0000 http://alegare.com/?p=15#comment-82 Dorothy, You will never regret the time you devoted to his care. I am so thankful with you that your lives are built on the rock of faith in Jesus Christ. Our hope and future is sealed in eternity. Blessings to you and your husband. Dorothy,
You will never regret the time you devoted to his care. I am so thankful with you that your lives are built on the rock of faith in Jesus Christ. Our hope and future is sealed in eternity. Blessings to you and your husband.

]]> By: Dorothy Pollak http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-81 Dorothy Pollak Mon, 05 Jul 2010 00:32:37 +0000 http://alegare.com/?p=15#comment-81 Thank you so much for your story. My husband has CBGD, and has reached the point where he is beginning to have a tremor in his left hand, has difficulty speaking at times, falls from time to time because of the shuffling walk, has to have assistance with dressing and sometimes with eating. I had planned to retire on my 65th birthday in 2011, but suspect we don't have that long to travel and do things we can enjoy together, so am preparing to quit my job and be with him over the next year. Your faith in Christ, as with us, is a foundation you can't match. We started noticing symptoms about 4-5 years ago, slight at first, so have been trying to speculate as to the progression and time frame. Now, it doesn't matter. What matters is that God has given us provision to live over the next year without me working. When he goes, I know he will be with the Lord. Thank you so much for your story. My husband has CBGD, and has reached the point where he is beginning to have a tremor in his left hand, has difficulty speaking at times, falls from time to time because of the shuffling walk, has to have assistance with dressing and sometimes with eating. I had planned to retire on my 65th birthday in 2011, but suspect we don’t have that long to travel and do things we can enjoy together, so am preparing to quit my job and be with him over the next year. Your faith in Christ, as with us, is a foundation you can’t match. We started noticing symptoms about 4-5 years ago, slight at first, so have been trying to speculate as to the progression and time frame. Now, it doesn’t matter. What matters is that God has given us provision to live over the next year without me working. When he goes, I know he will be with the Lord.

]]> By: Susan Ayers http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-57 Susan Ayers Tue, 12 Jan 2010 21:13:14 +0000 http://alegare.com/?p=15#comment-57 Anne, Thank you for sharing, I cannot tell you how much I can relate to your and your mom's story, amazing. My mom has passed and the one thing that I remember the most was how her hands were able to start un-clenching once she was at the hospice center. How wonderful that was to see and also to know that her body was no longer in pain. No one should ever have to endure such pain as this disease inflicts. Funding research is the key to cures. Anne,
Thank you for sharing, I cannot tell you how much I can relate to your and your mom’s story, amazing. My mom has passed and the one thing that I remember the most was how her hands were able to start un-clenching once she was at the hospice center. How wonderful that was to see and also to know that her body was no longer in pain. No one should ever have to endure such pain as this disease inflicts. Funding research is the key to cures.

]]> By: Jean http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-54 Jean Thu, 03 Dec 2009 20:20:36 +0000 http://alegare.com/?p=15#comment-54 That was a beautiful story. We just lost my mother in law yesterday to this disease. It was more suffering than I've ever seen anyone go through in my life. She was 69. He husband is devastated. He took care of her to the end. Thank you for sharing. I believe that is how God would have us see things too! That was a beautiful story. We just lost my mother in law yesterday to this disease. It was more suffering than I’ve ever seen anyone go through in my life. She was 69. He husband is devastated. He took care of her to the end.
Thank you for sharing. I believe that is how God would have us see things too!

]]> By: Anne Peterson LeGare http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-53 Anne Peterson LeGare Thu, 08 Oct 2009 03:17:52 +0000 http://alegare.com/?p=15#comment-53 Dear Friends, After an 8-year battle with the disease, my mom, Ollie, died on September 20, 2009. As she was going, her hands were unclenching. It was so nice to see her hands again. Her last words to me were the sweetest "I Love You" I have ever heard. She's now free from pain and the confines of her body. My prayers are with those of you still in the fight. Dear Friends,

After an 8-year battle with the disease, my mom, Ollie, died on September 20, 2009. As she was going, her hands were unclenching. It was so nice to see her hands again. Her last words to me were the sweetest “I Love You” I have ever heard. She’s now free from pain and the confines of her body. My prayers are with those of you still in the fight.

]]> By: TLB http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-52 TLB Sun, 30 Aug 2009 02:34:43 +0000 http://alegare.com/?p=15#comment-52 Thank you for this account. My mom was recently diagnosed with CBD and we are both pretty scared. I've read alot of frightening stories. I am hopeful my mom's will be different. How is your mom doing today? I wish you luck and blessings. Thank you for this account. My mom was recently diagnosed with CBD and we are both pretty scared. I’ve read alot of frightening stories. I am hopeful my mom’s will be different. How is your mom doing today? I wish you luck and blessings.

]]> By: Anne http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-50 Anne Wed, 12 Aug 2009 03:17:40 +0000 http://alegare.com/?p=15#comment-50 Thanks Donna -- it was hard to write. I cried through the whole thing. My mom is now in a nursing home. Her twin died in March. She continues to fight, much like your mom. Since I wrote the article, I feel even closer to her. It's been a growing experience for me. Thanks so much for commenting and mostly for relating. Thanks Donna — it was hard to write. I cried through the whole thing. My mom is now in a nursing home. Her twin died in March. She continues to fight, much like your mom. Since I wrote the article, I feel even closer to her. It’s been a growing experience for me. Thanks so much for commenting and mostly for relating.

]]> By: Donna http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-49 Donna Wed, 12 Aug 2009 02:23:10 +0000 http://alegare.com/?p=15#comment-49 Beautiful story..glad you found your way back to your mom and became close again before its too late. A Mothers love is like no other ! My mom also has CBGD...it has been 13 long yrs, she is still hanging on. It has been a rough road. I wish you and your family the best. Thanks for sharing. Beautiful story..glad you found your way back to your mom and became close again before its too late. A Mothers love is like no other !
My mom also has CBGD…it has been 13 long yrs, she is still hanging on. It has been a rough road. I wish you and your family the best. Thanks for sharing.

]]> By: Bob http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-21 Bob Fri, 19 Dec 2008 20:44:01 +0000 http://alegare.com/?p=15#comment-21 I am happy that you've gotten to the place you are but saddened to know that my family will have to endure your heartache. I have recently been diagnosed with CBGD. I am trying to quickly get my affairs in order while I still can. If there was something you wished your mother had done before now that she can't now do, what would that be? Thanks, and God bless. I am happy that you’ve gotten to the place you are but saddened to know that my family will have to endure your heartache. I have recently been diagnosed with CBGD. I am trying to quickly get my affairs in order while I still can. If there was something you wished your mother had done before now that she can’t now do, what would that be?

Thanks, and God bless.

]]> By: Rajj http://www.annelegare.org/2008/11/corticobasal-ganglion-degeneration-mom-and-me/comment-page-1/#comment-13 Rajj Wed, 12 Nov 2008 19:58:01 +0000 http://alegare.com/?p=15#comment-13 Anne, I hope you find comfort from being there for your Mom now. My Dad also has CBGD and it really hurts to see this disease take over their body and soul. Thanks for sharing your story. Rajj Anne,

I hope you find comfort from being there for your Mom now. My Dad also has CBGD and it really hurts to see this disease take over their body and soul.

Thanks for sharing your story.

Rajj

]]>